AUSTRIA

EDS Ehlers Danlos Syndrom Support Group
Sechsschimmelgasse 25/13
1090 Vienna
Austria
Hannes Tannich
wuermchen39@gmx.at
Note: this association is primarily intended for patients affected by Ehlers-Danlos syndrome(s).

BELGIUM

Belgium EDS Support Group
Mrs Chris Aubry
eds@bindweefsel.be

Website: www.bindweefsel.be 
Note: this association is primarily intended for patients affected by Ehlers-Danlos syndrome(s).

Groupe d'Entraide des syndromes d'Ehlers-Danlos
25 rue de la Motte
1399 Archennes
Mme Ute Costermans
jacques.costermans@swing.be

Note: this association is primarily intended for patients affected by Ehlers-Danlos syndrome(s).

DENMARK

The Danish Ehlers-Danlos Society
Chairman: Lykke Rehder
Ellemosevej 50
2900 Hellerup
lr@ehlers-danlos.dk

Website: www.ehlers-danlos.dk 
Note: this association is primarily intended for patients affected by Ehlers-Danlos syndrome(s).

FINLAND

The Finish Rheumatism Association
Iso Roobertinkatu 20 - 22 A
FIN-00120 Herìlsinki
Jaana Hirvonen
iaana.irvonen@reumaliitto.fi

Note: this association is primarily intended for patients affected by Ehlers-Danlos syndrome(s).

Finnish Central Organisation for Skin Patients
Karjalankatu 2 B, 3rd floor
FIN-00520 Helsinki
Finland 
harvinaiset.ihosairaudet@iholiitto.fi
 
Website: www.iholiitto.fi 

FRANCE

Cutis Laxa Internationale
122 Clos des Ecoliers
74140 Saint Cergues
France
Marie-Claude Boiteux 
mcjlboiteux@aol.com
 
Website: http://asso.orpha.net/cutislax 
Note: this association is primarily intended for patients affected by Cutis Laxa.

Service de Médecine-Vasculaire-HTA, Hôpital Européen G. Pompidou

Ehlers Danlos Syndrome Association
67 rue Jules Lecesne
76600 Le Havre
France
Marie-Noëlle Gaveau-Glantin 
marienoelgaveau@aol.com
 
Website: www.afsed.com 
Note: this association is primarily intended for patients affected by Ehlers-Danlos syndrome(s).

GERMANY

Deutsche Ehlers-Danlos Iniziative e. V.
Grauthoffweg 78
D-33758 Schloss Holte-Stukenbrock
Johanna et Gilles Guénot
guenot@aol.com

Note: this association is primarily intended for patients affected by Ehlers-Danlos syndrome(s).

IRELAND

Ehlers-Danlos Sindrome Support Group-Ireland
24 Wendell avenue
Portmarnock Co Dublin
Betty et David Rea
Note: this association is primarily intended for patients affected by Ehlers-Danlos syndrome(s).

ITALY

A.I.S.E.D. - Associazione Italiana per la Sindrome di Ehlers-Danlos
Dipartimento di Biochimica
Via Taramelli 3B
I-27100 Pavia
Sig.ra Maurizia Valli
dbioc@unipv.it

Note: this association is primarily intended for patients affected by Ehlers-Danlos syndrome(s).

"M. Baschirotto" Association for rare diseases (ONLUS)
via B. Bizio,1, Costozza di Longare
Vicenza
Italy
36057
Giuseppe Baschirotto
Anna Albarello 
info@lemalattierare.org
 
Website: www.lemalattierare.org 

PXE Italia Onlus
Via della Ferriera, 17
Bologna
Italy
40133
Sig.ra Valeria Azzaroni
pxeitalia@libero.it
Website: www.pxeitalia.unimore.it

NORWAY

Leder Norsk Forening for Ehlers-Danlos Syndrome
Postboks 4568 Nydalen
NO 0404 Oslo
Norway
Mr. Kristen L. Skogrand
Eva Melsaeter
Note: this association is primarily intended for patients affected by Ehlers-Danlos syndrome(s).

SPAIN

ASEDH
Pza Carme Monturiol n. 3, 4°-3°
08036 Barcelona
Spain
Beatriz Jiménez
asedh@asedh.org

Website: http://asedh.org
Note: this association is primarily intended for patients affected by Ehlers-Danlos syndrome(s).

SWEDEN

Ehlers-Danlos Sindrome Riksförbund
info@ehlers-danlos.se
Website: www.ehlers-danlos.se 
Note: this association is primarily intended for patients affected by Ehlers-Danlos syndrome(s).

THE NETHERLANDS

V.E.D.
Stationsplein 6
3818 Le Amersfoort
President: Margrieth Veenhuizen
Jaap Smit
jrsmit@zonnet.nl

Note: this association is primarily intended for patients affected by Ehlers-Danlos syndrome(s).

UNITED KINGDOM

Ehlers-Danlos Support Group
PO Box 337
Aldershot GU12 6LJ
United Kingdom
Libby Godden 
director@ehlers-danlos.org 
Website: www.ehlers-danlos.org 
Note: this association is primarily intended for patients affected by Ehlers-Danlos syndrome(s).