Ectodermal Dysplasias - Patient Associations

FINLAND

Finnish Central Organisation for Skin Patients
Karjalankatu 2 B, 3rd floor
00520 Helsinki
Finland
harvinaiset.ihosairaudet@iholiitto.fi
, toimisto@iholiitto.fi
Website: www.iholiitto.fi

ITALY

A.N.D.E. Associazione Nazionale Displasia Ectodermica
Via Cascina Fidelina, 19
20061 Carugate (MI)
Italia
Giulia Fedele Kleemann
segreteria@assoande.it
Website: http://www.assoande.it

"M. Baschirotto" Association for rare diseases (ONLUS)
via B. Bizio,1, Costozza di Longare
Vicenza
Italy
36057
Giuseppe Baschirotto
Anna Albarello
info@lemalattierare.org

Website: www.lemalattierare.org

NETHERLAND

Ectodermal Dysplasia Netherlands
Aernout Drostkade 30
Gouda
The Netherlands
2802 TN
Rob Heij
voorzitter.edn@gmail.com
Website: www.ectodermaledysplasienederland.eu, www.ednl.webklik.nl

SPAIN

Fundaluce, Spanish Fighting Blindness Foundation
Montera 24 4º J
28013 Madrid
Spain
Jose María Casado
Andrés Mayor
Andres@retinosis.org
Note: this association is primarily intended for patients affected by Congenital hypotrichosis with juvenile macular dystrophy and Ectodermal dysplasia, with ectrodactyly and macular dystrophy.

TURKEY

Ectodermal Dysplasia Group
University of Dicle, Faculty of Dentistry and Medicine
Diyarbakir
21280 Turkey
Izzet Yavuz
iyavuz@dicle.edu.tr
, izzetyavuz@hotmail.com
Website: www.ektodermaldisplazi.com

UNITED KINGDOM

Ectodermal Dysplasia Society
108 Charlton Lane
Cheltenham, Glos.
England
GL53 9EA
Diana Perry
Sue Atkins
diana@ectodermaldysplasia.org
Website: www.ectodermaldysplasia.org