Registration agreement and privacy statement

PLEASE READ THIS AGREEMENT CAREFULLY. BY REGISTERING TO USE WWW.GENESKIN.ORG (THE "SERVICE"), YOU ACCEPT AND AGREE TO ABIDE BY ALL THE TERMS AND CONDITIONS OF THIS AGREEMENT. YOU AGREE THAT THIS AGREEMENT IS ENFORCEABLE LIKE ANY WRITTEN NEGOTIATED AGREEMENT SIGNED BY YOU. IF YOU DO NOT ACCEPT THE TERMS AND CONDITIONS OF THIS AGREEMENT, YOU MUST CLICK ON THE "CANCEL" BUTTON AND NOT REGISTER TO USE THE SERVICE. WHEN USED IN THIS AGREEMENT, THE WORDS "YOU" AND "YOUR" MEAN THE PERSON THAT IS REGISTERING FOR THE SERVICE AND THE WORDS "WE," "OUR," "US" AND "BPS" MEAN EDF, THE OWNER AND OPERATOR OF THE SERVICE.

The GENESKIN website is part of the GENESKIN project which was supported by EU FP6 funding and is now supported by EDF. This publication contains information about rare genetic skin diseases that we believe might be of interest to patients, family members and health care professionals. The website is under the responsibility of the project participants which all have expertise in these diseases. Its objective is to disseminate information, but not to be a substitute for consultation of healthcare professional. The user thereof utilizes the information at its sole risk and liability. The authors strive to ensure that the contents are correct and up-to-date. However, administrator and GENESKIN participants can not guarantee the accuracy or timeliness of information and can not be held responsible for any omission. If you are aware that any of the information here contains mistakes or needs updating, please tell us. The authors cannot be held responsible for harmful, truncated or erroneous use of any information found on this website. Links to external websites are provided for users convenience. The GENESKIN website does not endorse, control, monitor, or guarantee the information contained in any external website. GENESKIN does not accept any responsibility for any loss, disruption or damage to your data or your computer system which may occur whilst using material derived from this website. GENESKIN does not warrant that the functions contained in the material in this site will be uninterrupted or error free. All the material published on the GENESKIN website is copyright protected. No part or elements of this website can be used for commercial purposes without written consent.

We take your privacy and security very seriously. When you choose to use Geneskin you're entrusting us with something important to you. We're going to do everything we can to make sure that your information stays safe and private.

YOUR USE OF THE SERVICE WILL ALSO BE GOVERNED BY THE TERMS OF USE AND PRIVACY POLICY, WHICH ARE INCORPORATED INTO AND MADE A PART OF THIS AGREEMENT IN THEIR ENTIRETY.

Registration/Account

a. In order to access the restricted area, you will be required to create a unique username and password or select another authentication mechanism (in each case, your "Credentials"). You may only access the Service using your Credentials, and may not access the Service using the Credentials of any other person.

b. You may not resell, in whole or part, or otherwise commercially exploit, assign or transfer your right to use the Service. You may not make your Credentials available to others, nor allow use of the Service by others through your Credentials.

c. You agree to accept sole responsibility and liability for maintaining the confidentiality of your Credentials, for restricting access to your Credentials and for all use, whether authorized or unauthorized, of the Service under your Credentials.

We will, and you expressly authorize us to, use the information you provide in your Registration only to communicate with you about services, features and content available through the web site

d. You agree that, in using the Service, you will at all times:

(i) comply with this Agreement and the Terms of Use and Privacy Policy for the Service;
(ii) be solely responsible for all content or information published or displayed by you through the Service;
(iii) not take any action that would expose EDF or its officers, directors, owners, agents, partners, information providers or affiliates to liability to any third party

Use of Cookies: This site uses only "technical" cookies which are used to provide a service requested by the user (example authentication). Without the use of such cookies some operations could not be carried out. Google analytics cookies are considered "technical" as they are used only for optimization of the site by the owner of the site itself, by collecting aggregate information on the number of users and how they visit the site.